“Realize deeply that the present moment is all you have.
Make the NOW the primary focus of your life.”
― Eckhart Tolle
Late Infantile Batten Disease receives almost
NO FEDERAL FUNDING!
As close as they are to real treatment for this
none of these experimental approaches can proceed without funding.
Our goal is to spread awareness by sharing
Rex's story with you.
We encourage you to share his story with others. Together we can make a difference for the future.
Rally for Rex